GDPR and Clinical Trials Position Paper
On 16th October 2024, Cancer Trials Ireland published a position paper on GDPR and clinical trials in Ireland.
What the Position Paper on GDPR contains
- Data that demonstrates strong public support in Ireland for clinical trials, and the sharing of health information under controlled circumstances.
- Clear calls to action that the Government can take to ameliorate the effect of Ireland’s interpretation of GDPR/HRR relating to clinical trials (& health research)
- A legal analysis of the spirit and purpose of GDPR, and how it is applied to health research in Ireland
- An overview of the GDPR-related issues besetting the clinical trials community
- Data showcasing the variability of Ireland’s approach to GDPR & clinical trials
- Comparative data from EU countries highlighting differences in approach between Ireland and other jurisdictions
Public Webinar on Cancer Trials from May 2024
Since 2017, Cancer Trials Ireland has rolled out an annual campaign (Just Ask) to promote public awareness and understanding of clinical trials and associated issues. Just Ask 2024 is supported by:
Public Webinar
Join our free public webinar to find out more about cancer clinical trials, and hear from real patients who have taken part. Sign up below to receive the link to join. If you have any questions about the webinar, you can contact comms@cancertrials.ie
Public Webinar: Monday, May 20th 2024 @ 1pm
Registration
Patient leaflet
Brochure with Q&A
Just Ask campaign / historical
Since 2017, Cancer Trials Ireland has rolled out an annual campaign (Just Ask) to promote public awareness and understanding of clinical trials and associated issues.
Just Ask 2022 is support through an unrestricted grants from:
Expertise:
Why take part in a trial?
Just Ask 2021
Trial accruals
Due to COVID, overall, the number of patients getting on trials fell by 45% for the first quarter of this year, versus last year. Click here for more.
Outreach
Patient stories:
- Siobhan Gaynor (RSVP Live, Newstalk)
- Peter McNamara (TheJournal.ie; Today FM)
- Nicola Lyons (Wicklow People)
- Joanna Twomey (Irish Independent)
- Peter Mulvany (Irish Mirror)
- Mairead Mangan (Sunday World)
Why trials matter
Ireland's inaugural Cancer Retreat, May 21st, 2021
An Taoiseach providing opening address.
Click above to see the full agenda.
The Cancer Retreat is a day-long online event that provides an opportunity to discuss how the cancer trials community works together, how that might be improved, and what challenges and opportunities may emerge in the coming five years.
The Cancer Retreat is a major element of the 2021 Just Ask Campaign.
Just Ask 2021 is support through an unrestricted grants from:
Just Ask 2020
The campaign for 2020 was, like most things, interrupted by the COVID-19 pandemic. Nevertheless, the campaign launched in two phases:
- Around International Clinical Trials Day in May (as is usual)
- On Nov 30th 2020
The outputs of both campaign phases are contained on this page. They include research, a petition, a patient videos, the most recent press release, and a two-page highlights document that captures all of the key findings from the public attitudes research.
The petition element of this year’s campaign was created in consultation with members of the research community from a range of patient organisations, including the Irish Cancer Society. Cancer Trials Ireland would also like to thank HRB-CRDI and the Health Research Charities of Ireland (HRCI) for supporting the campaign online. In two weeks, the petition gathered more than 500 signatures from people working in, or affected by, health research.
The Just Ask campaigns are supported by unrestricted grants from Industry. Just Ask 2020 is supported by Pfizer Healthcare Ireland; Novartis; AbbVie; MSD; Roche; Bayer.
Press release & Petition
The press release issued on Nov 30th 2020 is available here.
- 1 in 2 people are willing to participate in a clinical trial
Cancer Trials Ireland CEO, Eibhlín Mulroe said:
“Among many other more general findings, the research also revealed a high level of awareness (63%) of Cancer Trials Ireland itself. We must pay tribute to the late, great Pat Smullen for that fact. In 2019 he raised €2.6m for pancreatic cancer trials and in so doing, catapulted us into the public eye. We can never thank him or his family enough for what he did.”
May 2020: International Clinical Trials Day
International Clinical Trials Day was on May 20th this year. Cancer Trials Ireland celebrated, with the rest of the health research community, through an intensive digital campaign featuring stories from people who have taken part in trials Seamus Cotter; Tiernan Clarke).
The campaign also highlighted our involvement in COVID-19-related studies.
Just Ask 2020 is support through an unrestricted grants from: