GDPR Position Paper Launch – Webinar

As part of the Just Ask campaign for 2024 we are hosting a free public webinar to learn more about cancer clinical trials.

Join us on Monday, May 20th, at 1pm, along with Cancer Trials Ireland’s Clinical Lead, oncologist Professor Seamus O’Reilly, and Seamus Cotter, a patient who took part in a life-changing clinical trial.

Register here to join on the day: Just Ask about cancer clinical trials – Cancer Trials Ireland

If you have any questions about the webinar, you can contact comms@cancertrials.ie

The webinar is part of Just Ask 2024, which is supported by unrestricted grants from:

Event details:

  • Date: Wednesday 16th October
  • Time: 9am – 10am
  • Location: Online via Microsoft Teams (Register to receive the link)

What the Position Paper on GDPR contains

  • Data that demonstrates strong public support in Ireland for clinical trials, and the sharing of health information under controlled circumstances.
  • Clear calls to action that the Government can take to ameliorate the effect of Ireland’s interpretation of GDPR/HRR relating to clinical trials (& health research)
  • A legal analysis of the spirit and purpose of GDPR, and how it is applied to health research in Ireland
  • A brief overview of the GDPR-related issues besetting the clinical trials community
  • Data showcasing the variability of Ireland’s approach to GDPR & clinical trials
  • Comparative data from EU countries highlighting differences in approach between Ireland and other jurisdictions

 

If you have any questions about the webinar, you can contact comms@cancertrials.ie

Since 2017, Cancer Trials Ireland has rolled out an annual campaign (Just Ask) to promote public awareness and understanding of clinical trials and associated issues. The GDPR Position Paper & Launch event are elements of the 2024 Just Ask campaign, which is supported by: