SIOPE DIPG Registry

About this trial

To find effective treatments for DIPG and DMG, researchers need to better understand how the diseases work. Because DIPGs and DMGs are rare compared to adult brain tumors, most hospitals see few patients with these tumors, making it difficult for researchers to collect enough information to look for new treatments. And because most DIPGs are not biopsied, researchers do not have access to large numbers of tumor samples for research. The DIPG/DMG Registry will collect information and tumor samples from DIPG and DMG patients around the world and make it available to researchers studying the disease.

Patient Profile

Where’s this trial being run?

Crumlin Children’s Hospital

Can I join this study / trial?

The first thing you do is to talk to your doctor and/or the cancer trials research team in your hospital. The contact details for the cancer trials research units in Ireland is here.

Why not Print this page and bring it with you. It will help your doctor and research team advise you.

For more detailed information

Questions?

Here’s a list of questions you may have for your doctor or local cancer research team.


Summary Data

Name: SIOPE DIPG Registry
Number: 19-31
Full Title:

A SIOPE Registry for diffuse intrinsic pontine glioma (DIPG)

Principal Investigator: Dr Jane Pears
Type: Collaborative
Sponsor:
Recruitment Started: Global:
Ireland:
Global Recruitment Target:
Ireland Recruitment Target: 8